GOSH BRC/DRIVE Data Engineer(UK Visa Sponsorship)

Job Description

Use Data to Change the Future of Rare Disease Care

We are looking for a skilled and purpose-driven Data Engineer to join our Digital Research Environment (DRE), funded through the GOSH Biomedical Research Centre (BRC).

This is more than a technical role. It is an opportunity to design the data infrastructure that powers AI innovation, genomics research, and clinical breakthroughs for children with rare and complex conditions.

You will work alongside clinicians, data scientists, and academic collaborators to ensure that research data flows securely, efficiently, and reliably—turning information into insight and insight into better outcomes for children.

The Bigger Picture

The Digital Research Environment supports high-impact research projects across multiple NHS Trusts and academic institutions. As Data Engineer, you will play a central role in enabling projects such as:

• Real-time neuro-oncology imaging integration
• AI detection models in neonatal care
• Health economic analysis of rapid genomic testing
• Cross-site neonatal screening data initiatives
• Development of craniofacial and rare disease datasets
• Natural Language Processing tools in paediatric diagnostics

Your work will underpin safe, compliant, and scalable research data use within one of Europe’s leading paediatric research ecosystems.

Your Key Responsibilities

 Data Engineering & Infrastructure

• Design, optimise, and maintain complex data pipelines
• Extract, transform, and provision data for research and operational use
• Develop high-performance SQL queries and database solutions
• Ensure FAIR data principles (Findable, Accessible, Interoperable, Reusable)
• Document metadata, workflows, and integration processes
• NHS data governance principles

 Research Platform & System Integration

• Support and optimise REDCap implementation
• Collaborate with platform suppliers and external partners
• Integrate structured and unstructured healthcare datasets
• Ensure data validation, testing, and quality assurance
• UK data protection guidance

 Testing & Quality Assurance

• Develop comprehensive test scripts
• Track and manage system testing cycles
• Escalate technical risks and issues appropriately
• Generate documentation and technical standards

 Training & User Enablement

• Deliver training to clinicians, researchers, and operational users
• Support adoption of best practice data use
• Provide technical troubleshooting and advisory support
• Promote responsible data use across research teams
• Research governance framework

 Leadership & Team Contribution

• Provide day-to-day supervision to junior engineers or interns
• Participate in monthly DRE operational meetings
• Contribute to reporting and performance reviews
• Represent the DRE and BRC at workshops and conferences

What We’re Looking For

Essential

• Degree-level education (or equivalent experience)
• Postgraduate qualification or equivalent professional experience

Epic Certification

• Strong SQL and database administration skills
• Proficiency in at least one programming language (e.g., Python, Java, C, Rust)
• Experience developing data workflows in complex environments
• Knowledge of software development lifecycle (SDLC) practices
• Experience supervising projects or junior staff
• Ability to manage competing deadlines in high-pressure settings

Desirable

• Experience with healthcare data standards (FHIR, OMOP)
• Genomics or rare disease dataset experience
• Text mining or NLP expertise
• NHS or clinical research environment experience
• Dashboard development (e.g., R Shiny, Plotly/Dash)
• Higher degree in analytics or research

Regulatory & Compliance Framework

This post operates within UK legal and governance requirements including:

• Skilled Worker visa guidance (if sponsorship required)
• Disclosure and Barring Service (DBS)
• Rehabilitation of Offenders Act guidance
• UK Research governance principles

This role requires enhanced DBS clearance due to regular contact with vulnerable individuals.

Our Commitment to Inclusion

• At Great Ormond Street Hospital for Children NHS Foundation Trust, we believe diverse teams build better systems and deliver better healthcare outcomes.
• We actively encourage applications from individuals of Black, Asian and Minority Ethnic heritage, disabled professionals, and members of LGBTQ+ communities.
• Our employee networks REACH, ENABLED, PRIDE and Women’s Network are supported at Executive level and foster an inclusive working environment where all voices are valued.

Why Join This Role?

• Work on nationally leading paediatric AI and genomics research
• Contribute to rare disease breakthroughs
• Gain experience across multiple NHS Trusts and academic partnerships
• Develop leadership and research infrastructure skills
• Apply advanced data engineering in a mission-driven setting

This role is ideal for a technically strong, socially motivated Data Engineer who wants their expertise to directly improve children’s healthcare.